Marching to our new normal

 The only normal people are the ones you don't know very well-Alfred Adler

Well normal would not be something we are well known for around here, but our not-so-normal is becoming something we are getting used to.  

The big hulking human (well at least to me, I'm 5'2", and everything over that is huge) has decided to keep his doctors scratching their heads.  To be fair, he always had medical "stuff", but it was only in the past 3ish years we got names to them.  POTS and MCAS have been the all-star line-up.  

The worst part was getting shuffled around and blown off.  We even went to a highly recommended pediatrician and she suggested we put my son in an eating disorder clinic.  Yeah, I'm sure that would cure POTS in a heartbeat.  

So anyway, my child WITHOUT an eating disorder finally was seen by a specialist who knew POTS and teamed up with our local cardiologist.  It was magic and stuff started happening.  They actually listened to Marvin and came up with a plan to help him. 

Marvin has a port now and gets IV fluids twice a week.  He is on specialized medication to help his MCAS.  For the first time in years, we have something I had not thought possible.  Stability.  

At his doctor's appointment, his specialist commented that this was the first time in three years that Marvin was stable.  Not only stable but growing and thriving.  I wanted to hug the doctor but he said he hates people, so I just shook his hand instead.  I'm pretty sure he washed it after that.  

No new medications, no new therapies to add for this at least, and NO VISITS for 6 months. I am beyond thankful.  

The one thing I have learned with my kids is that you can't give up.  You have to fight.  Even when you are worn out, just keep fighting.  Because Marvin deserves more than subpar services.  All of our kids do.