My Family

My Family

Sunday, March 3, 2013

Crappy Week

This last week has tanked.  In a big way.  It seemed like life waited and dumped all the crap it could on me at once.

We started out last Sunday with Cary feeling crummy.  She has a pretty high pain threshold but something was off she cried and wailed and I ended up having to rush her home from church and Sunday school.  After a big dose of ibuprofen we made it though the day.  She had a rocky night and I rushed her to the doctor to find out that her ear infection is still there.  We started round two of antibiotics.  I also had to cancel her therapies for the week.  Cary was just too sick and unhappy.  Rare for my little one.

We made it through Tuesday and she seemed to be rebounding so I decided to keep her hearing testing on track.  We went down to Staunton on Wednesday to do another round of tests.  The results weren't good.  We are looking at hearing loss.  How much we don't know.  We also are unsure if it is because of her infections or if it is more sinister.  I got to the car with her and cried.

On Thursday we went back to the pediatrician to find out that the antibiotics aren't doing anything and her infection is still there.  We go back this week to see what to do next.  I also made an appointment for ANOTHER specialist.  An ent and an audiologist.  Fun fun fun.

I also found out Cary needs some adaptive toys to help her out. Adaptive toys are not cheap.  I no longer am employed and we live off of one income.  These toys would help her out with her development, but the cost is unreal.

Cary has also been refusing solids.  I have to put them in her bottle to get them down her at all.

To end the week Marvin and I got some sort of GI bug that has had us feeling not great.  I will spare you the details.  You're welcome.

Like the proverbial toddler I just want to met down and have a tantrum and throw things.  Scream.  I understand that things will not always go great, but really?  All at once?  It is so frustrating and feels very overwhelming.

There have been a few bright spots that have make this week somewhat livable..  We have a great team at VCU who moved heaven and earth to get me in soon.  When I posted on my facebook page about needing adaptive toys friends came forward with suggestions that I am following through on.  We got to a fish fry and be with friends.  True I didn't win a quilt I had my eye on but I got a funky new piece of furniture at the action.  I am still deciding what it is going to be.  Long story, did I mention it was unusual?

This week begins a little calmer, but I don't expect it to stay that way for long.  We have had a bunch of changes and early intervention is out of compliance with my IFSP.  I expect it to get ugly with my vision provider and the head office.  I will be calling for a meeting and an overhaul my IFSP.  Oh joy.

We are also expecting snow.  Not that that is a bad thing, but I am kind of ready for spring.  I am tired of sick children.  Ready to be outside a bit more.

I know things will get better and that these things will pass, but I am impatient and want them done now!

Life goes in cycles.  There are good ones and bad ones.  We are just stuck on a bad one now.  I march on through this, grimly determined to see it through and ready and waiting for a good cycle.


  1. What kind of toys specifically does she need?

    1. Dear Anonymous,

      It is kind of complicated. Lots of people have asked. I think I will write a post about this next! Thanks for asking and check back soon, hopefully I can write it tomorrow to help explain.

  2. Ok. Thank you. I will be anxiously awaiting.

  3. I did post but I am not sure if you wanted more specifics or not. Right now I am looking for toys that respond to butterfly touch. Sort of minimum effort maximum results. Bright colors and braille items for her vision impairment. Hope this helps!

  4. Oh, I hadn't seen the new post. Thanks